Placing a life-changing treatment beyond the reach of NHS Scotland is devastating for people like meAt 7am, I wake up and, while most people are starting their days, having breakfast and making their way to work, I – like the 10,400 people in the UK with cystic fibrosis – am beginning my daily treatment regime. For me, this involves a concoction of 30 tablets to fuel my morning, each with their own variety of debilitating side-effects, from sickness to dizziness and fatigue. The morning calm is disturbed by my noisy inhalation machine as I breathe in medications, while a positive pressure machine helps me cough up thick, sticky mucus from my lungs, which takes another hour. All in all, it’s a glamorous way to start the day.
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